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Jul 11, 2015 2:00 PM

Never give up: a small community gathers to bring awareness to neurofibromatosis


CONCORD - A young woman fighting neurofibromatosis helped to raise money and awareness about the disease to benefit others during a walk in Rollins Park on Saturday.

Friends and family members gathered to support those diagnosed with neurofibromatosis, a disease that causes tumors that can eventually turn into cancer to grow along nerves within the body.

Kristine Poirier, director of community relations the Children's Tumor Foundation in Boston, said the disease is a form of mutation, and anyone can be born with the mutation.

Poirier said the disease, which has three different types, could lead to deafness, blindness, learning disorders, and could eventually turn into cancer.

The event was organized by Maria Caravona, 27, of Gilmanton, who is diagnosed with one of those types. Her mother Robbin Caravona, of Belmont, said she is very proud of her daughter for organizing the walk.

"She wanted to do something herself....it is gratifying for her to help other people," Caravona said.

The walk was not only to raise awareness for the disease but also to help raise funds to help find a cure.


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